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Blue November: Week 4

OMG! It's week 4 of DAM already!

Coral's sensor died early, so I'll be adding posts intermittently and may just add them all on Sunday. Pardon for the lag, but you know how it goes - everyday is different with Type 1 diabetes. Hope you all have a Happy Thanksgiving and don't forget to bolus! Do what you gotta do and just enjoy yourself.

T1dlife-Section504-School

Day 20: Section 504 of the Rehabilitation Act of 1973 prohibits recipients of federal funds from discriminating against people on the basis of a disability (including diabetes)

A formal contractural health care plan outlining all accommodations necessary to care for a diabetic child during school is known as a “504” plan. Putting this plan together usually involves meetings between the parents, child, school staff (nurses, teachers, principal, special education facilitator), and diabetes health care providers. πŸ‘©πŸ»‍πŸ«πŸ‘©πŸΌ‍⚕️πŸ‘©πŸ»πŸ‘¨πŸ»
. . .
The child is not only protected from discrimination by this law during the school day but on any school-sanctioned activity as well. A diabetic child has the right to a free and appropriate public education including accommodations to manage their diabetes at school. The child may also need special accommodations under the “Individuals with Disabilities Act” (IDEA) which protects them if their experiencing any learning difficulties due to their diabetic (hypoglycemia, hyperglycemia, hypounaware). If the child misses any lessons due to having to inject or treat a low with a snack or juice or check their blood sugar, this may impact their learning abilities as well. Share & tag @type1diabetic_life πŸ“‘
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Source: Chase, Peter H., MD and David M. Maahs, MD, PhD. “Understanding Diabetes: A handbook for people who are living with diabetes.” P 261-264.

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Day 21: Type 2 diabetes has a stronger risk for inheritance than Type 1 diabetes

I’m almost all cases, a parent and/or grandparent will also have the disease. In the case of identical twins, if one twin develops Type 2, the other twin has an 80 percent chance of also developing the disease. In T1d, an identical twin has a 35-50 percent chance of developing the disease. πŸ‘¨‍πŸ‘©‍πŸ‘§‍πŸ‘§
. . .
Many different potentially-inherited (genetic) defects that vary between families exist with Type 2 diabetes. There isn’t just one common defect in all families. Whereas with T1d, there are several different Islet Cell Antibodies (ICA - more on that later) that exist which makeup the predictability of early diagnosis of the autoimmune disease. πŸ™πŸΌ
. . .
Source: Chase, Peter H., MD and David M. Maahs, MD, PhD. “Understanding Diabetes: A handbook for people who are living with diabetes.” P 22.

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Day 22-24: I’m thankful that my baby girl was diagnosed before

it might’ve been too late and even more thankful for everyday that she’s still alive despite all the physical, emotional and mental challenges that accompany #Type1diabetes. We were strong to begin with and now, even stronger after her diagnosis. #Family sticks together through sickness and in health. Those aren’t just wedding vows in our house. πŸ’ͺπŸΌπŸ€œπŸΌπŸ€›πŸ½
. . .
Day 23: I also want to thank the #T1dcommunity for all your support from both my Instagram accounts, or if I know you in-person, and all my recent customers. You guys are da bomb! Hope you all enjoyed your #Thanksgiving. πŸ¦ƒπŸ₯‚
. . .
Day 24: A #supportive adult who is readily available, but not overbearing or constantly nagging, can be of significant help to a person with any type of #diabetes of any age. Even parents of older teens still need to help with making sure adequate diabetes supplies are available (and paying for them), #bloodsugars and trends are logged, drawing up or giving injections, and that clinic appointments are made and kept every three months. Don’t assume that they’re willing to accept ownership of this disease even after having it for years. They’d much rather be out with their peers, might be busy with schoolwork, job-searching or picking a college. Take things one step at a time and build trust with your child while encouraging their independence. They will thank you one day rather than choose to look the other way. πŸ’™
. . .
Source: Chase, Peter H., MD and David M. Maahs, MD, PhD. “Understanding Diabetes: A handbook for people who are living with diabetes,” 12th ed. P202. πŸ“•

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Day 25: Steroidal medications such as cortisone and prednisone

are used to treat asthma, arthritis, emphysema, and muscle/joint inflammation. These drugs will cause a significant insulin resistance and raise blood sugars - sometimes dramatically and keep a diabetic “high” or over 200mg/dL for hours upon use. Inhalers (containing albuterol) and topical steroids (in cream or ointment form) can also raise blood sugar levels. Growing Type 1 diabetic's may experience a rise in their blood sugars upon waking after 8:00am due to a cortisol hormone that your body naturally releases. This is NOT to be confused with "Dawn Phenomenon" which literally takes place at dawn between typical hours of 2:00am-5am due to growth hormones in young T1d's. This will require speaking with your endocrinologist about increasing bolus and/or basal amounts on a pump or injections. πŸ‘©πŸΌ‍⚕️
. . .
Source: Scheiner, Gary, MS, CDE. “Think Like a Pancreas.” P 196. πŸ“”

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Day 26-27: As we come to the final week of November

I’d like to share some #diabetesetiquette cards with you and encourage you to share as well. Don’t forget to tag @type1diabetic_life. I’ll also be posting them on my blog at the end of the month. These are more for the non-diabetics in our lives (by choice or not). πŸ˜‰
. . .
1) Unsolicited advice is rarely ever welcomed especially when it comes to managing an exhausting disease such as Type 1 diabetes. So please, keep your thoughts to yourself when it comes to what we can or cannot eat - no, cinnamon won’t help us reverse T1d (not reversible) and cutting back on sugar is such an outdated belief. T1d’s can eat anything any non-diabetic can with proper dosing and timing of insulin and accurate carb counting. πŸ₯ŸπŸ€
. . .
2) Realize and acknowledge that managing diabetes is a lot of work - a job I didn’t want, don’t get paid for and can’t quit. There’s so much more to it than just multiple blood sugar checks (pokes), daily injections of insulin (T1ds need insulin to live, no other medication will keep them alive or maintain safe blood sugars), stress factors, growth hormones, and counting carbs. Not to mention the steep learning curve immediately following diagnosis. Seriously, cut us some slack. We deal with enough pricks already. πŸ˜“
. . .
Inspiration: behavioraldiabetesinstitute.org πŸ–₯

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Day 28: Spare me any diabetes horror stories about anyone you might have known who lost a foot or died from diabetes

3) I can guarantee it was most likely due to irresponsible and poor diabetes management and majority of those unfortunate cases are Type 2 diabetics. My, now, three-year-old, Type 1 diabetic will absolutely NOT have those complications because we are A) managing her T1d carefully, B) educated and continue to educate ourselves - more than someone to suggest such despair, and C) have invested in the best medical care and diabetes technology such as an insulin pump and continuous glucose monitor that money can buy. This is NOT a comment to make when speaking to any type of diabetic at any stage of their diagnosis. It's just plain rude and brutally unsympathetic. Shut your mouth and just buy them a coffee.
. . .
4) Offer to join me or us in making healthier lifestyle choices instead of pressuring me to go out and party or eat regular cakes and fried fatty foods. It's okay on occasion and in moderation, but not on a weekly basis. Try to keep all the sweets out of my Type 1 diabetic child's direct vision as well, it's already challenging enough to keep her blood sugars stable when she constantly wants to snack. Much appreciated. Feel free to share with family and friends and rephrase it into your own words.

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Day 29: Don’t look so horrified when I have to check my blood sugar or give myself an injection

5) This is the bare minimum I must do [for my child] to stay healthy and alive. If you’re ashamed or grossed-out, then educate yourself and turn away. Don’t expect me to make my autoimmune disease more comfortable for you. πŸ’ͺ🏼
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6) Try to ask me how you might be helpful. It may not be what or how you expected, but just hearing and knowing you care would mean a lot. For example, grandparents can help check their grandchild’s blood sugars while Mom finishes the dishes, does some laundry, or gets her nails done. 🍽
. . .
7) Don’t offer me false reassurances by saying thoughtless things like, “It could be worse - at least you [or your child] doesn’t have cancer.” Don’t be a prick like my moms BF and say this the day after diagnosis. This implies that Type 1 diabetes isn’t as serious as cancer - both are severe conditions in their own way. The main difference is my baby requires insulin by injection and/or pump in order to live for the rest of her life. There still, is no cure or any other form of treatment for her autoimmune disease. πŸ˜‘
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Share and tag @type1diabetic_life on Instagram and follow @typeonediabeticlife on Facebook. Mahalo and live well. Stay educated so you non-d’s, know how to truly support a Type 1 diabetic. πŸ“š

Day 30: Every day is an opportunity to spread diabetes awareness and educate others who WANT and CARE to learn

I’d like to end November with the final few diabetes etiquette cards:
8) Try to be a positive influence in my life by surrounding me with healthy options when dining with you and not constantly tempting me or my child with sweets or any type of carbs when her blood sugar isn’t low. It’ll be beneficial for all of us to live well, exercise, and eat certain foods in moderation. πŸ•πŸœπŸ·
. . .
9) Friends and family members may not realize this, but constantly questioning or criticizing a T1ds blood sugars is annoying and frustrating. They may mean well, but it’s best not to go about it without a T1ds knowledge like peeking at their Dexcom then shaming them for high or low BGs (just an example). Although this disease is manageable, some days will be harder than others and that’s when they need to be even more understanding and supportive. πŸ‘¨‍πŸ‘©‍πŸ‘§
. . .
10) Offer your love and genuine support and if no words come to mind, a hug will be just fine. To learn how to genuinely support a T1d or their parent, read my previous posts and take the initiative to educate yourself about this disease. The more support a T1d has, the greater the chances of him or her succeeding in taking control of their diabetes and minimizes any feelings of isolation and depression. ✊🏼
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*NOTE: Examples given are not to be taken literally. Apply each Diabetes Etiquette card to your life in situations you see fit. Always use good educated judgement for self-care and be kind before commenting on other people’s posts especially when you barely know the person. Share and tag @type1diabetic_life on Instagram. Mahalo and live well.πŸ’™

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